April 30 update.
So this morning I woke up with a crack in my heart. The word has already spread around the Internet last night but today I felt like I needed to write a little to let out some of the pain I got inside, Aidan Jack Seeger was the son of my good friends Bob and Elisa Seeger, so when I was informed last June that their 6 yr old son Aidan was seeing some doctors to see what was the reason behind him reading really close up in school, which was witnessed by his teacher at the time, to not long after to find there was "something going on in his brain" and we later found out it was something called ALD, ( Adrenoleukodystrophy ). The last time I saw Aidan was 4th of July weekend when I spent time with the Seegers Bbq'ing and hanging out at the beach, knowing that the next day (Monday) they where literally packed up and driving down to North Carolina to immediately get set up in a hospital to undergo a blood core transfusion and a bone marrow transplant. I tried to hang out with Aidan and the family and enjoy the time knowing that Aidan was about to undergo a lot of strenuous things.... At that time I didnt want to think about it but In the back of my head I thought " I hope this isnt the last time I see the lil bugger. I hoped for the best, hoping they would get to it early enough and he would make a full recovery and be back in Brooklyn hanging out again with his pops soon..... Unfortunately this was not the case, last night Bobby and Elisa made probably the hardest decision they will ever have to make in their lives, to take Aidan off the Meds that where keeping him alive, I don't really know specifics, but from what I gathered, all of the experimental drugs and things that he had tried over the last months had done soo much internal damage that it was ruining the lining of his stomach amongst everything else his body was being shocked with on a daily basis from idiot nurses attempting to double dose him ( thankfully for the the mom being on top of things as much as should could, she was able to correct things when she saw the mistakes) and just everything the poor lil guys body had indergone through out this ordeal. Last night at 8:30 Aidan passed away in the arms of his parents.
So I don't know if this is to help others understand what is going on, or if this was just a way for me to gather my thought and process it all better myself, but in leaving these words here I hope people can understand a little bit about the pain the Seegers must be going through, something I can't even imagine. My heart is with you guys and anything I can do I am here to help in any way I can. If anyone is interested in helping in any way, I am hoping to paint a nice portrait and Aidan's name on a wall in Brooklyn, some place that would get a lot of traffic and be permanent , where I could come back and clean if necessary. This I hope to do as soon as I lock a place down. Feel free to email me if anyone knows of anything like this. STAFF@MR-EWOKONE.COM
If anyone wants to read up on the progress of Aidan and more depth of his story please visit a site we put up to keep a central home base for everyone down with the posse to be able to get news and info.
Here's a couple vids I put together for everyone this past year.
The Posse is forever.
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